So . . . when is he coming home? This is the question on everyone's minds. For the past two days, there has been talk of sending him over to an inpatient rehabilitation program. We had mixed feelings about that idea, because it includes at least 3 hours a day of intensive therapy. For certain, Henry is not back to where he was, and it may be a long road to regain some of the skills he already had. But he tires so easily that it seems excessive for him. Still, I was willing to give it a try if it meant that we would still be able to have all the resources of a hospital surrounding him.
Until last night, they were weaning him off of his oxygen. Two nights ago, he only needed a small amount for about an hour. Last night, he never needed it!!
He is also weaning off of his pain medications. This is something we can do at home, but I have felt more comfortable being here for it since he has shown signs of withdrawal and they have made changes to the dose accordingly.
He is also learning how to use the bottle again. Yesterday, he took three 2 oz bottles over the course of a day! His ng tube may be in for a while, and we have been told to prepare ourselves to bring him home with his tube. We would be trained to use the pump and reinsert the tube if needed (he's getting the hang of hooking the small, untaped part of the tube with his finger and trying to pull it out). Again, I know we can do it, but we've had one nurse insert his ng tube into his lung - fortunately an x-ray showed the error before it became a problem. Without an x-ray, I'm not sure I'd feel comfortable doing it myself!
Today, they have determined that the inpatient rehab program is not the best fit for him. Their best guess is that he will be here through the weekend and possibly be discharged on Monday. Henry is probably ready to leave the confines of the hospital . . . It's MOMMY who needs to be weaned!