Wednesday, November 4, 2009




I am so excited to work for a truly wonderful company with people who have amazing hearts. They have been so supportive and understanding in the midst of Henry's diagnosis, early arrival and in the days that have followed.

Every December, Baby Loves Disco has "Dance for a Cause" events, and this year they have decided to partner with the National Down Syndrome Society (in honor of Henry)!! A portion of the ticket sales will be donated to the NDSS, and in addition they will be holding raffles and giving 100% of those proceeds to the NDSS! There will be three events (Brooklyn, Philadelphia, and Manhattan). BLD is an afternoon dance party for kids and their parents -- my own kids LOVE it and I do too (hey, I'm not just biased, I loved it before I ever worked for them!).

I know there are several parents of kids with DS who visit this blog from time to time, and I just wanted to spread the word (and ask you to spread the word too!) about these events. I would love to raise a lot of money for the NDSS in Henry's name!

Sunday, November 1, 2009

Halloween Pics



Friday, October 30, 2009

Two Months Old




Still too busy to blog these days, but I thought I would add some fall photos of the kings. Henry is two months old today and is just wonderful. He has increased his intake and gained some weight, so the feeding clinic "graduated" him. With our hectic days, I was happy to scratch that off the list! He was recently evaluated by Early Intervention and qualified for OT services, which should be starting that next week (with a focus on feeding and head control). He has the sweetest disposition and still doesn't cry or fuss much unless it's tummy time, but if William is there talking to him, he tolerates it much longer! :) I do hope to be able to write more here as we settle into our new routine and am even considering posting some of the activities we do at home as a part of the blog. Til then. . .enjoy the photos!

Friday, October 2, 2009

Catching Up




What ever gave me the idea that I would have time to blog while taking care of three kids, a house and a part time job? I am realizing that some things just won’t fit into my day, and blogging (if you haven’t noticed) has had to get in line behind other, more pressing duties. Still, I would love to post updates whenever I get a free moment, and I happen to have one little moment this morning (thanks, Diego)!

Believe it or not, Henry is already one month old!! As you can see from the recent photos, he has changed so much already (along with everything else in our daily lives, it seems).

It was quite a surprise arrival! Scott was out of town serving as the best man in a wedding. I was nervously trying to just get through the weekend without him, hoping I wouldn’t go into labor (but never really thinking it would happen!!). When he left on Thursday, I packed a hospital bag for myself and an overnight bag for the boys in case they needed to stay with someone. I was reassured when my friend Alison joked, “You’re prepared, so it won’t happen!” By Saturday night, I was breathing a sigh of relief that we had gotten past the wedding and Scott would be returning the following evening. I spoke to him around midnight, told him I’d see him at the airport, and went to bed. Just three hours later, I woke up and immediately realized that my water had broken. Panicking for a split second, I reminded myself that I had rehearsed this scenario in my mind and was as prepared as I could be. I called Scott in New Hampshire, my parents in Ohio, and Alison who lives just a few minutes away – all of them knew it had to be me when their phones rang at 3 am! Alison took me to the hospital while her husband Josh watched 5 boys (my two and their three)!

Despite our best efforts to wait for Scott (who managed to get an early flight and would arrive around noon), Henry was born at 9:07 am. I am so grateful for a friend like Alison, who stayed with me and was even there at the birth to welcome Henry and be the first to hold him (apart from the doctors and nurses) and videotape his first moments. Since I had a c-section, I didn’t get to hold him right away, but got to see him and kiss his sweet face before they took him to the nursery.

It was a LONG day after that. Scott arrived around noon as expected, but Henry still wasn’t with us. Late that afternoon, our pediatrician came in and told us he was having trouble transitioning (he had low heart and breathing rates), and they wanted him to be stabilized a bit more (they were deciding whether or not to send him to the NICU). Fortunately, he improved and they brought him to us at 5:30 pm. He stayed on the heart/apnea monitor during our 5 day stay at the hospital, but improved every day and was able to come home without the monitor. Apart from that tiny scare, the only problems we have had are some feeding issues. Henry never got the hang of nursing and was rapidly losing weight after we got home. He is now on a high calorie formula and is finally gaining weight (though still only takes about 1 - 2 oz at a time on average).

He is a wonderful sleeper and a really easy baby! He doesn’t cry much, and his cry isn’t very loud (though I’m sure his brothers will teach him how to speak up for himself). Every minute with him is a JOY! There is much more to say, but this is a long post already . . . and little people are getting hungry for lunch! ☺

Tuesday, September 8, 2009

3 Weeks Early!



Henry Aaron arrived 3 weeks early after all! 7 lbs 11 oz, 20.5 inches. Daddy was out of town and my water broke in the middle of the night. He sure surprised us! But we are so thankful that he is here.

Wednesday, August 19, 2009

Boys



Can I just take a moment to say how much fun little boys are? I had to share this picture of Edmund playing with his baby doll the other day. We had a good laugh!

Ready or Not?

I have been wondering if there is something to the notion that babies with Down Syndrome are born early.  I had read the comment on a few blogs and have also gotten emails from some other parents of babies with DS who have said, "You know he'll be early, right?"  My not-so-extensive internet research doesn't turn up any facts about this, just a few conversations between parents.  Mostly, I've laughed it off (I can't imagine what would make it true), but I have to admit that it has been in the back of my mind! 

It was especially in my mind last Friday when we were getting ready for a night out with my mom and aunt.  I was having so much pain I could hardly stand up to get dressed, but it didn't feel anything like contractions as I remember them so I thought I had probably pulled a muscle. We finally got to the restaurant, but I couldn't ignore it anymore. The doctor on call recommended that I come in to the hospital, so we skipped our lovely night out for a night in L&D. When I arrived, the nurse confirmed that I was having strong contractions and even said she thought this was probably "it."  But after a few hours on IV fluids, the contractions were gone.  It was a frustrating night, but I am relieved that Henry didn't arrive too early!

We have scheduled a c-section (so there's the illusion that we have some control over when he is born), but we are starting to realize that he could really arrive any time.  Even though he is my fourth baby, my other labor/delivery experiences were not typical and always included some form of decision-making on my part.  We chose to induce 2 1/2 weeks early with Sydney so our parents could be in town and meet her in the short time we had.  With William . . . I'll say it . . . I drank castor oil to go into labor (hey, I had basically been pregnant for 2 years at that point!) and ended up having a c-section.  Edmund's c-section was scheduled for two weeks before his due date and all went as planned.  I suppose I've been assuming the same for Henry, but one difference is that the c-section is scheduled only 3 days before his due date. I can't shake the thought that I've never been pregnant within 3 days of my due date.

Better go pack my hospital bag . . . just in case . . . .